HH Sheikh Mohammed has personally stepped in to pay the AED8 million cost for a baby’s injection due to her rare disease.
Iraqi baby Laveen Ibrahim has a rare disease of spinal muscular atrophy and is being cared for at the Al Jalila Children’s Specialty Hospital in Dubai.
And her life-saving AED8 million injection including a gene treatment has just been administered.
The hospital said, “Today, lovely baby Laveen received a successful gene treatment for SMA, from our experts at Al Jalila Children’s Specialty Hospital. Our prayers for a speedy recovery for baby Laveen and all our children.’
It’s the world’s most expensive gene therapy and was only possible after His Highness Sheikh Mohammed Bin Rashid Al Maktoum, Vice-President and Prime Minister of the UAE and Ruler of Dubai stepped in to cover the cost of the injection.
Laveen was diagnosed with Stage II Spinal Muscular Dystrophy (SMA) which is a genetic disease that affects the central nervous system. And without the one-time injection, it’s likely her conditions would have seriously deteriorated.
But the gene therapy should reverse and cure her SMA and symptoms. Which is incredible news!
She’ll then undergo three months of treatment and rehabilitation.
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